As another Crohn’s & Colitis Awareness Week comes to end, we now have to look forward to what’s ahead. Just because the week of awareness which is recognized by the government is ending, doesn’t mean that the work stops.
When it comes to any chronic disease, there isn’t any one day, week or month to raise awareness and help those who are affected by them. Every disease really has 365 days of awareness each year, some are just recognized more than others. The work never ends in order to help others who need assistance with everything that any disease brings. Research never ends, cures need to be found and people need to have hope that things will get better.
Crohn’s disease and ulcerative colitis come with extra challenges that other disease don’t have. Many symptoms which an Inflammatory bowel disease brings are uncomfortable to talk about and for many people it’s embarrassing. But everyone goes to the bathroom, some go more than others and some with ostomies even go to the bathroom a little differently.
Many people now are extremely understanding about all diseases. I want to share a part of a video with you from the IIF’s Comedy for Crohn’s & Colitis event this year. In my speech to start the event, I talk about the disease and how it can affect people, but show how no one should be embarrassed to talk about it. Please note the reaction from the audience. The video should begin when I start to talk about ostomies.
I want to help people with Crohn’s disease, ulcerative colitis and ostomies feel as comfortable as possible with their diseases. Being able to talk about your disease and share what you’re going through is very important. If you don’t share what you’re going through, then you will be living alone and it will only make it harder. Sharing with others allows a person to build a support network around them. A network of people around you is one of the most important things a patient with Crohn’s disease and ulcerative colitis to have. This is why our slogan is Never Stay Quiet!
Crohn’s & Colitis Awareness Week is meant for many things. Hopefully I’m doing my part in order to help others with these diseases. Even though this week is over the Intense Intestines Foundation will continue its work in order to help those with IBD and ostomies. My work has been extremely fulfilling and I’m looking forward to another year of helping people in 2013.
Never Stay Quiet!